By Mike Hyland, President and CEO
The 2020 federal budget proposal contains countless line items and notations, as is expected in any document so large and overwhelming. Even in all that minutiae however, one particularly disgraceful item stands out: the call to eliminate all funding for Special Olympics. Once again it seems that people with disabilities are in danger of being cast aside and left behind so that money can go to others. Enough already!
Education Secretary Betsy DeVos has proposed a budget
that would end federal funding for Special Olympics. As offensive as that proposal is all on its
own, her rationale for minimizing the importance of this intentional neglect is
absurd. DeVos stated that Special
Olympics “is well supported by the philanthropic community”. This is true but what the secretary is
missing is the whole point of a not-for-profit status. The Special Olympics, just like provider
agencies, is permitted by law to fundraise because the government readily admits
that the work is underfunded in the first place. Taking away those relatively few dollars is a
public rejection by DeVos and others of the value of Special Olympics and other
organizations that support people with disabilities. In fact, her proposal would negatively affect
close to 300,00 children across the country.
So why is Special Olympics so important? Because since the ‘60’s, the organization has
opened doors and opportunities for people with disabilities in ways that never
existed before. These people were
finally given the chance to participate in organized activities that improve
health, confidence, and self-esteem while at the same time creating genuine
relationships and inclusion. People with
disabilities who were shuttered away for so long now have a bevy of programing
choices that span across the world and offer participation and achievement for
individuals who were denied these opportunities for generations. Special Olympics has also worked tirelessly
to confront and end the stigma that people with disabilities have always had to
endure, giving them a public platform to celebrate their efforts and
successes. It is truly baffling that
some in government would choose to make this work even harder than it already
Unfortunately, it’s not an unusual step from Secretary
DeVos and the administration in D.C.
It’s the 3rd year in a row they’ve proposed slashing funding
for Special Olympics, though the first attempt to end funding outright. It’s difficult to fathom just what those
people have against people with disabilities.
The almost $18 million spent annually on Special Olympics is irrelevant
in the $4 trillion federal
budget, making the annual attack on this crucial funding even more
ridiculous. It’s time that those in
power stop seeing the disabilities community as low hanging fruit for budget cuts. Thankfully, the proposal is not very likely
to pass in Congress when the budget is finally done. What’s troubling, however, is the yearly need
to still stand up and try to defend the relative pittance that an organization
like Special Olympics gets from the government to provide precious
opportunities for so many people.
By Mike Hyland, President and CEO
The end of the year tends to be a busy time. The holidays are upon us, there are seemingly endless tasks and errands, high school seniors are planning the next steps in their lives, and Old Man Winter makes his annual return. This is also the time of year when Congress tries to wrap up business. In 2017, that means tax reform, which we all know is an unfailingly complicated business. In addition, this year Congress will also take up the chore of confirming (or not) a new Secretary of Health and Human Services. With all due respect to the enormity of the work happening in Washington D.C., we should be careful to ensure we don’t leave people who need help, and those who provide that help, behind. In other words, let’s make sure we keep the promise.
It is most important that we remember that massive change has the potential to inflict unintended consequences on various groups. As such, our Congress has a responsibility to be sure that any legislation or action does not inadvertently harm people with disabilities or the professionals who work tirelessly to help them. The cost of providing quality services to people is not cheap, and it’s not supposed to be. An automobile with front and side airbags costs more than one with pillows stapled to the steering wheel because it’s safer for people, and that’s what provider agencies do: we keep people safe. Providing supports that allow people to live vibrant lives with dignity and choice is the minimum of what we should require as a society. And this is not just a responsibility at the national level either. Individual states must also ensure that we don’t lose the gains we’ve made over the years.
Massachusetts is one of a number of states now moving under the auspices of managed care entities the fiscal oversight responsibilities for many of the services provided to people with disabilities The goal of reducing redundancy through better coordination of care is appropriate and even admirable. That goal, however, is dwarfed by the responsibility to make sure that no one who currently receives community supports is forced to make do with less. We must take great care to guard against the pitfalls experienced in states such as Texas, where many severely disabled children have seen a horrifying reduction in vital services, or Kansas, where some families have been asked to sign blank treatment plans that ultimately called for drastic cuts to supports that keep loved ones in the community. Massachusetts has always been a compassionate leader in the provision of social services and that commitment must remain absolute in the face of any systemic changes that may take place
As politicians struggle with the need and pressure to reduce runaway costs in certain areas, they owe it to everyone who receives community based-supports to remember just what people with disabilities (and their families) were told to expect when such supports were moved out of institutions and into local communities. They were promised that people would be safe. That is a promise that needs to be kept. It’s everyone’s responsibility to see that it is.
Assistive Technology can best be described as a variety of items which can help an individual work around functional limitations imposed by a disability. Some of these items include wheelchairs with adaptive trays to hold a person’s iPad, a brace for a person to be able to hold an eating utensil, a built-up handle of a spoon, or a communication device. These items are essential to improving the quality of life and level of independence for people with disabilities. Other examples of such equipment might be lifts, swings, tricycles, tablets, computer software, shower chairs, specialty writing utensils and so much more. These items can help individuals with mobility, communication, sensory, recreational, or social needs.
With the increasing specialized needs of the individuals we support, Venture has developed an Assistive Technology Committee to help effectively meet these needs. Key employees have been attending conferences and trainings to learn how to develop a program that will help assist individuals access the resources available. Currently, the committee is in the process of conducting assessments to determine what equipment would be most helpful to the individuals in our programs.
In keeping with our mission to enrich the lives of those we serve, we are very proud to announce our partnership with Tantasqua Regional Vocational High School in their commitment to assist people in their community by creating individualized and innovative assistive technology. This fall, we will be working with Ray Rousseau from the Manufacturing Department and Bruce Tranter from the Computer Technology Department to assist us in developing creative approaches. We are looking forward to teaming up to expand our services and we are thankful to the many students who will be dedicated to helping with these projects. Stay tuned for updates!
Morgan’s Wonderland, the country’s most accessible theme park, has opened the world’s first inclusive water park. Morgan’s Inspiration Island offers the excitement and fun of a water park to children and adults of all abilities, and offers complimentary waterproof wheelchairs (including air-powered power wheelchairs), warm-water splash pad, beautiful interactive water playgrounds, cabanas for relaxing, and a river boat ride. Spacious accessible changing rooms, reasonable ticket prices, sensory-friendly environments, and handicapped-accessible everything make this water park an incredible experience for everyone – especially those who haven’t had the opportunity to enjoy an amusement park due to physical disabilities, developmental disabilities, ambulation difficulties, or medical conditions. Admission for those with disabilities is free of charge. This park has truly thought of everything!
The park’s creator, Gordon Hartman, is a philanthropist who created the amusement park and water park after being inspired by his daughter Morgan, who has developmental disabilities. In addition to funding the parks, the Gordon Hartman Family Foundation offers grants to organizations that help people with special needs. Let’s hope that others around the country take the lead of Morgan’s Wonderland and make recreational opportunities available for everyone!
For more information, check out their video.
By Mike Hyland, President and CEO
With the year half over already, the U.S. Senate is working furiously to pass a bill that overhauls the Affordable Care Act before Congress recesses for the July 4th holiday. A bill written in complete secrecy by just 13 members of the 100-member Senate is finally making its way to all of the people who will ultimately vote on it next week and, like the bill passed by the House of Representatives last month, the details are alarming.
Of paramount concern is the Senate’s plan to mirror the bill passed by the House that significantly cut Medicaid over a ten-year period, while also converting it to a block grant. It is not just an assault on Medicaid, but an unequivocal betrayal of people with developmental disabilities and the hard-working men and women who support them in the community. With Governor Baker already asserting that this legislation will cost Massachusetts billions if enacted, the Commonwealth will find itself in a position where draconian cuts to basic supports will be inevitable. The human service industry already struggles to hire people, and will now be gutted even further. The funds available to increase wages will disappear. There have been months of advocacy that have taken place to educate the White House and Congress about what these cuts will do to people with disabilities, as well as the professionals dedicated to helping them. Both the proposed Senate and House bills represent that the people who wrote them and voted for them just don’t care. They know that services for people with disabilities will be cut and that pay for direct care professionals will freeze. Their actions prove they truly don’t give a damn. How did we allow our society to get here? If there is one thing that elected officials should be able to agree upon, it is the duty to protect people with disabilities and the too-long-taken-for-granted workforce that helps them. Instead, President Trump and leadership in the House and Senate have chosen to abandon them and dedicate dollars that currently support these groups to the most affluent in our country via a tax cut. Perhaps worst of all, these actions come following a promise from candidates that, if elected, they would protect Medicaid and the disabled. Obviously, it was a lie from the start.
There is still a process that these bills must go through before becoming law. Essentially, the House and the Senate must find a way to reconcile the two bills into one and send it to the White House to be signed. It is my hope that people will flood lawmakers like never before with phone calls and emails that decry this horrific dismissal of people in need. We should inundate our lawmakers with the notion that people with disabilities have the right to live safely in local communities. We must also remember the professionals who are dedicated to supporting them. So many people have worked way too hard, for far too long, under grueling circumstances to be so blithely abandoned in favor of millionaires and stubborn ideology. Gandhi once said, “The true measure of any society can be found in how it treats its most vulnerable members”. If one believes this, it would seem that we are dangerously close to failing the test.
On Monday, Venture representatives attended a Disability and Health Care Forum with Congressman Joe Kennedy hosted by the Association of Developmental Disability Providers at the Boston Marriott in Newton. The event was attended by staff members and leadership from human service agencies, self-advocates, and family members of people with disabilities. Kennedy shared his commitment to “recognizing the potential in every person”, regardless of their physical or intellectual disability.
Congressman Kennedy expressed his concern about the American Health Care Act and how it will affect the rights of people with intellectual disabilities, with $1.4 trillion in cuts to health care. He shared his concerns regarding threats to social security, affordable housing, food stamps, and even Special Olympics. He pledged his commitment to the disability community, saying that we cannot support “cuts to services that we will all likely use someday, or be used by someone we love”. In addition to thanking attendees for their activism, he encouraged the group to continue advocating and raising their voices. He asked advocates to contact friends and family in other states and encourage them to find one more Republican Senator to oppose the AHCA.
Recently, Congressman Kennedy addressed Congress, rebuking The American Health Care Act. Watch the video here.
Congressman Joseph Kennedy III represents the 4th District of Massachusetts and is a member of the House Energy & Commerce Committee. For more information, visit his web site.